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June 11, 2008
A Good Read
by Naomi Shulman I used to be the kind of person who always had several books going at once — one in the living room, one on my nightstand, and one in my bag, for my subway commute. Once I had children, I kissed those days goodbye; I can't imagine having that kind of free time now. Lucky for me, my job at Wondertime involves reading a lot of articles — and even luckier, they're really good articles (if I do say so). But recently I read an actual full-length book — Schuyler's Monster, by Rob Rummel-Hudson, about his experiences raising his exceptional daughter, Schuyler, who has a condition that renders her mute. I'm a longtime follower of Rob's blog,and when Schuyler's diagnosis was first revealed, some five years or so ago, I sat in front of my laptop and wept — and not just for Schuyler. My own daughter Lila was 2 at the time, and I shuddered to imagine the road that lay before these parents. I had only the vaguest inkling of what this family was about to undergo, though. We excerpted a chapter from Rob's book in our March issue, and I was stunned (and riveted) by his revelation of how Schuyler's diagnosis impacted his marriage. It's a somewhat taboo subject, the effect that having a special-needs child can have on the parents' relationship. Rob discusses some of the choices he and Julie have made in our follow-up interview; as always, Rob's voice is unblinkingly candid and funny, even in the face of judgment and fear. In the end, though, as much as his story is that of a special-needs parent, it's also just the story of a parent, and the heart-stopping totality of love one feels for one's child. I know: You don't have any more time for pleasure reading than I do. (Don't ask me how many books I've read since.) All I'm saying is, if you find yourself with a moment, this is a memoir worth looking at. Get to Know Naomi: Naomi Shulman is Wondertime's research chief. She lives in Northampton, MA, with her husband Chris, daughters Lila (7) and Stella (4), and their fluffy dog, Sullivan. Post a comment
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